In this role, the Senior Research Nurse will advocate for patients, support clinical services in conducting trials, and provide education to enhance confidence in participating in clinical research. They will also ensure the integrity of data collection, develop tailored patient information, and provide support to families and caregivers. This position requires strong leadership and effective communication skills to champion research initiatives within the Trust and on a national level.
As a Senior Research Nurse with specialty interest of research transition and Learning Disability, you will lead on the co-ordination and implementation of several research programmes from a variety of different specialities. These research programmes may start in the CRF and transition into the clinical service. Or they may be directly run in the clinical service. You will be accountable for delivery of patient care , clinical research family liaison, ethical recruitment of participants, through facilitating informed consent , administration of the clinical interventions required as part of the study, ensuring the observation ,responding and reporting to side effects ) is undertaken in a timely fashion as well as liaising with research staff in the Trust, drug companies , other study sponsors and ensuring the accurate collection and submission of data, in line with the study protocols and research regulations.
You will manage a caseload of research patients with complex transition and or learning disabilities. You will work alongside the Research Transition Lead nurse to map out patient's journeys on research trials including exit strategies such as compassionate use programmes, post-trial access and managed access programmes. You will advocate and champion for our research patients with learning disabilities and/or Autism to receive the highest possible standard of care throughout their research journey.
- Supporting and empowering clinical services to work on clinical trials.
- Education to the clinical services to feel confident and competent in participating in clinical research.
- Ensuring integrity of data maintained of clinical trials running in clinical services.
- Championing research across the trust and nationally through engagement opportunities.
- Supporting the Research Transition Lead Nurse on compassionate use programmes.
- Supporting the Research Transition Lead Nurse on Paediatric to Adult clinical trial transition.
- Provide expert support and advice to the multidisciplinary team in the management of patients with learning disabilities/Autism
- Ensuring that systems and processes are in place to identify research patients with learning disabilities/Autism and that their pathways of care are reasonably adjusted to meet their needs.
- Ensuring the availability of a comprehensive range of patient information, designed for and with patients or parents with learning disabilities/Autism who are participating in research.
- Ensuring that families and carers of patients with learning disabilities/Autism are properly supported, informed and engaged.
About us
The full job description provides an overview of the key tasks and responsibilities of the role, and the person specification outlines the qualifications, skills, experience and knowledge required. For both documents please view the attachment/s below.
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